The saga of nothing is simple continues.
I last reported that the medical supply company that provides my sleep apnea equipment had called to say they were waiting for a call back from my sleep doctor about the machine. She insists that the machine they want to bring me does exactly what the doctor has prescribed, but it is manufactured by a different company than the machine he ordered for me.
Later that day, the sleep doctor's office called me asking how long had I used this medical supply company, do I own my machine, why do I use that company. I could not answer most of her questions. She informed me that they wanted to bring me a different, cheaper machine than the doctor ordered and he would not approve it. She speculated as to why they wanted to do this. I told her what the woman had explained to me, but she insisted that the doctor knows that this alternative machine does not do what he needs it to do for me. I told her they needed to work it out.
I have heard nothing from either of them since then.
On to the CT scan saga. Last week I had the required blood work done. Yesterday I received the results in the mail, so called today to schedule the scan. (Even in my wildest imagination I could not make this stuff up!) When she looked at my information I had given her last week, she told me the insurance authorization number I had was only for a CT scan without contrast. The doctor ordered one WITH contrast. She told me I needed to call the doctor's office back to get a correct authorization number. I told her this was a nightmare, that it had taken me over a month for them to get me THAT authorization number, and I was SUPPOSED to have this scan done in January, and here it is, almost March.
I called the doctor's office and explained my predicament. Of course she was very nice, but I have absolutely no expectation of anything being done to get me another authorization number. As usual, she promised to call me back when they got the new number. I will not hold my breath. Maybe they will surprise me this time. But past experience makes me doubt it. It would be so much easier to just say forget it. It is just too hard getting anything done.
ON a positive note, I saw my chiropractor this morning. He told me he was very proud of the good work I am doing losing weight, eating healthy and working out at the gym. He adjusted my upper spine, then used the what I call the "drill" on my lower back. Although it hurts right now, I know in the long run it makes it feel better.
I am still trying to get the correct adjustment on my new sleep mask, so the bridge of my nose does not hurt so much, while keeping it from leaking air. I have to take my car in for service on Thursday because it is giving me an SRS malfunction message. And I just have not had the energy to deal with the colonoscopy yet, because I imagine all of the obstacles and difficulties scheduling that test will present. Nothing is simple.
Tuesday, February 24, 2009
Monday, February 23, 2009
Now I Lay Me Down to Sleep
Most people take going to sleep for granted. But that is not me anymore.
I used to snore a lot. In December, 2007 my hubby told me I would be snoring and all of a sudden I would stop breathing. Not just once but all during the night. In January ,2008 he told me he tried to hold his breath for as long as I did not breathe and he could not do it.
I went to see my doctor and he sent me for a sleep test. At the hospital where I had the test done, they hooked me up to a hundred wires - on my head, chest, arms, legs, finger. I did not think I actually slept at all that night. But I must have. Within hours of getting home, the doctor called and said the test showed I have severe sleep apnea and to return for another test using a sleep machine.
Again I was hooked up to a hundred wires and given a full face mask (because I am a mouth breather). I was hooked up to the sleep machine. At first I did not like it because I felt like I could not get enough air to breathe. As the pressure increased I felt a little better about it. Again, I did not think I actually slept that night, but apparently I must have as they determined what I needed from the machine to keep me breathing.
For me sleeping has never been the same. Having to wear that mask every time I sleep is a pain, but I do it. I have heard many people just do not tolerate it and rip it off during the night or else do not use it at all.
But my doctor scared me into wearing it. He told me without it I stopped breathing over 600 times in 6 hours - that I was the worst case of sleep apnea he had ever heard of - that my oxygen levels drop off the chart into heart attack country. SO I wear the mask and use the machine.
I recently got a new mask. It is a much better quality mask, with a softer area that cushions the face and less chance of air leakage. This mask also does not hurt my forehead. But the high pressure I need from the machine makes it necessary for me to wear the mask so tight that I wake up with indentations on my face and a red bump on the bridge of my nose. I have to tell myself it is worth it to keep me breathing all night. But it does not make it any easier.
I recently had another sleep test because my doctor felt this machine was not doing enough to keep me breathing. He said I was still stopping breathing over 100 times a night and my oxygen levels were still way too low. Right now I am waiting for the doctor and the medical supply company to battle out what kind of new machine I will get.
I long for the days when I could just crawl into bed, pull up the covers and doze off to sleep. Or when I could take a long road trip and nap in the car. Or watch a tv show and drift off to sleep. None of those are possible for me anymore. I must have the machine whenever I sleep. It is a matter of life and death for me.
Going to sleep with the mask is not easy most nights. It takes the machine 20
minutes to get up to full pressure. For me to fall asleep takes from 1 to 2 hours most nights. When I get up during the night to make a pit stop, I have to remove the mask, then try to get it back on when I return - so it takes another 1 to 2 hours to fall back asleep. Some nights the mask creeps up or starts leaking air and I have to wake up and try to adjust it - another 1-2 hours to fall back asleep. So, although I am sleeping deeper than I did before machine, I am still not getting a full night of sleep. I am hopeful the new machine will help me do better.
Tonight when you are crawling under the covers, be thankful that it is so easy to lay down to sleep.
I used to snore a lot. In December, 2007 my hubby told me I would be snoring and all of a sudden I would stop breathing. Not just once but all during the night. In January ,2008 he told me he tried to hold his breath for as long as I did not breathe and he could not do it.
I went to see my doctor and he sent me for a sleep test. At the hospital where I had the test done, they hooked me up to a hundred wires - on my head, chest, arms, legs, finger. I did not think I actually slept at all that night. But I must have. Within hours of getting home, the doctor called and said the test showed I have severe sleep apnea and to return for another test using a sleep machine.
Again I was hooked up to a hundred wires and given a full face mask (because I am a mouth breather). I was hooked up to the sleep machine. At first I did not like it because I felt like I could not get enough air to breathe. As the pressure increased I felt a little better about it. Again, I did not think I actually slept that night, but apparently I must have as they determined what I needed from the machine to keep me breathing.
For me sleeping has never been the same. Having to wear that mask every time I sleep is a pain, but I do it. I have heard many people just do not tolerate it and rip it off during the night or else do not use it at all.
But my doctor scared me into wearing it. He told me without it I stopped breathing over 600 times in 6 hours - that I was the worst case of sleep apnea he had ever heard of - that my oxygen levels drop off the chart into heart attack country. SO I wear the mask and use the machine.
I recently got a new mask. It is a much better quality mask, with a softer area that cushions the face and less chance of air leakage. This mask also does not hurt my forehead. But the high pressure I need from the machine makes it necessary for me to wear the mask so tight that I wake up with indentations on my face and a red bump on the bridge of my nose. I have to tell myself it is worth it to keep me breathing all night. But it does not make it any easier.
I recently had another sleep test because my doctor felt this machine was not doing enough to keep me breathing. He said I was still stopping breathing over 100 times a night and my oxygen levels were still way too low. Right now I am waiting for the doctor and the medical supply company to battle out what kind of new machine I will get.
I long for the days when I could just crawl into bed, pull up the covers and doze off to sleep. Or when I could take a long road trip and nap in the car. Or watch a tv show and drift off to sleep. None of those are possible for me anymore. I must have the machine whenever I sleep. It is a matter of life and death for me.
Going to sleep with the mask is not easy most nights. It takes the machine 20
minutes to get up to full pressure. For me to fall asleep takes from 1 to 2 hours most nights. When I get up during the night to make a pit stop, I have to remove the mask, then try to get it back on when I return - so it takes another 1 to 2 hours to fall back asleep. Some nights the mask creeps up or starts leaking air and I have to wake up and try to adjust it - another 1-2 hours to fall back asleep. So, although I am sleeping deeper than I did before machine, I am still not getting a full night of sleep. I am hopeful the new machine will help me do better.Tonight when you are crawling under the covers, be thankful that it is so easy to lay down to sleep.
Saturday, February 21, 2009
Valentine's Day Weekend - Part 3 (Visiting Family)
As I wrote in two previous blogs, my hubby gave me a wonderful Valentine's weekend in Nashville. Part 3 got delayed a bit by the continuing frustration of dealing with medical issues.
My mother was one of 7 children. She was born and raised in central Tennessee. When she met and married my Dad, they moved to NJ with him promising my grandfather that he would bring her to visit at least once a year. My Dad kept that promise his entire life.
For me that meant every summer spending time with all of my aunts, uncles, cousins and grandparents. They were some of the happiest times of my life.
Every summer my family would stay with my Aunt Beulah and Uncle Robert's family, where my grandparents also lived. My sister would go to Aunt Rosie's house. All of the good times I enjoyed there were spent with my cousin Don. He is about 8 months younger than I am. We laughed, we cried, we got into mischief, we joked, we explored and anything else that we could think of. But no matter what it was, we enjoyed our times together.During the months apart, we would write to each other. Probably except for my grandparents, I loved him and was closer to him than anybody else.
Don was born with a sweat gland problem. As a result he has what looks like scabs on most of his body. HE always struggled with feeling unloved and rejected due to this. But I always knew he was special. I was there when he accepted Jesus into his heart and was baptised in the river.
Of course as the years flew by, we grew up, got married, had families and although, we did not see each other as often, I still felt that close connection with him. He traveled some rough roads in his life.
In the last few years he has struggled with back problems and other medical issues, which for a long time went undiagnosed. When they were finally able to figure it out, he has MS. His digestive system seems to be the worst hit by this disease so far.
It seems we travel a similar road these days, in dealing with medical issues and back problems.
SO for Valentine's Day weekend, part of my gift from my sweet hubby was to visit with Don, his mother and his sister (my Aunt Beulah and cousin Helen) and his friend Richard.
Aunt Beulah is in her upper 80s now and cannot get around as fast as she used to, but she has maintained her wonderful sense of humor and her loving ways. She immediately noticed I had lost weight. Except for my hubby, my SIL Sharon and my friend Barb, really no one else has noticed. She says she cannot keep up with the house anymore, but she still cooks for Helen and her.
Don was in his big, comfy recliner (which is exactly like mine except his is red, mine is black). His knee was hurting pretty bad. He and Aunt Beulah both walk with the support of a cane. Don uses one that our grandpa carved.
The visit was such a happy one for me. All of those delightful childhood memories came flooding back. We laughed, we cried, we hugged, we shared our stories, we drank in each other. For me it was like healing balm.
I wish time had allowed us to visit Aunt Rosie, but hopefully next time.
My hubby gave me the best Valentine's Day weekend I can imagine. Thank you, sweetie. I love you.
My mother was one of 7 children. She was born and raised in central Tennessee. When she met and married my Dad, they moved to NJ with him promising my grandfather that he would bring her to visit at least once a year. My Dad kept that promise his entire life.
For me that meant every summer spending time with all of my aunts, uncles, cousins and grandparents. They were some of the happiest times of my life.
Every summer my family would stay with my Aunt Beulah and Uncle Robert's family, where my grandparents also lived. My sister would go to Aunt Rosie's house. All of the good times I enjoyed there were spent with my cousin Don. He is about 8 months younger than I am. We laughed, we cried, we got into mischief, we joked, we explored and anything else that we could think of. But no matter what it was, we enjoyed our times together.During the months apart, we would write to each other. Probably except for my grandparents, I loved him and was closer to him than anybody else.
Don was born with a sweat gland problem. As a result he has what looks like scabs on most of his body. HE always struggled with feeling unloved and rejected due to this. But I always knew he was special. I was there when he accepted Jesus into his heart and was baptised in the river.
Of course as the years flew by, we grew up, got married, had families and although, we did not see each other as often, I still felt that close connection with him. He traveled some rough roads in his life.
In the last few years he has struggled with back problems and other medical issues, which for a long time went undiagnosed. When they were finally able to figure it out, he has MS. His digestive system seems to be the worst hit by this disease so far.
It seems we travel a similar road these days, in dealing with medical issues and back problems.
SO for Valentine's Day weekend, part of my gift from my sweet hubby was to visit with Don, his mother and his sister (my Aunt Beulah and cousin Helen) and his friend Richard.
Aunt Beulah is in her upper 80s now and cannot get around as fast as she used to, but she has maintained her wonderful sense of humor and her loving ways. She immediately noticed I had lost weight. Except for my hubby, my SIL Sharon and my friend Barb, really no one else has noticed. She says she cannot keep up with the house anymore, but she still cooks for Helen and her.
Don was in his big, comfy recliner (which is exactly like mine except his is red, mine is black). His knee was hurting pretty bad. He and Aunt Beulah both walk with the support of a cane. Don uses one that our grandpa carved.
The visit was such a happy one for me. All of those delightful childhood memories came flooding back. We laughed, we cried, we hugged, we shared our stories, we drank in each other. For me it was like healing balm.
I wish time had allowed us to visit Aunt Rosie, but hopefully next time.
My hubby gave me the best Valentine's Day weekend I can imagine. Thank you, sweetie. I love you.
Thursday, February 19, 2009
Medical update - Nothing is SImple
Nothing is simple. Everything takes an act of Congress to get accomplished.
When I last wrote about my medical situation, the insurance company had messed up our address so I had to wait to schedule the CT scan.
I called this week to schedule the scan. It seems that since my last blood work was in August, they need me to have another set of blood work before they can schedule the scan. They must check my kidney function before giving me the contrast. I called the doctor's office telling them what I needed and why. They called me back saying the doctor had left the order at the front desk for me.
I went this morning, picked up the order from the doctor's office and headed over to the Lab. It seems everyone in Bucks County needed lab work today, so there was a long line.
There were two women working, but I think one must have been a trainee, because all she did was watch. The other one had to do all of the paperwork, type everything into the computer, make all of the copies, answer the phone AND do the lab work. SO progress was slow.
When it was my turn, I asked that in addition to the doctor, would they also fax it to OVDC where I will have the CT scan done. No, unless the doctor had it written on the order, they can only send it to the doctor and to me. SO I asked that they send it to me also. Again - nothing is simple. The doctor does not want or need this blood work done. It is the Diagnostic Center who needs it, but they cannot order it, only a doctor can order it. And so on.
In my last medical update, I mentioned how confused I was about the report from my sleep doctor and that I had a call in to the medical supply place to schedule my machine to be adjusted. When the woman called me back to schedule it, she asked for all of the information about my machine and determined it could not do what was needed. She said the technician would bring a new machine, similar to what I have now and we would trade. I was okay with that. The appointment was for today.
When I returned from the blood work, the woman called me to say that the doctor has asked for a specific machine, which she had not noticed. The machine they were going to bring does the same as the one he ordered, it is just a different manufacturer. They have called the doctor to ask if it is okay to give me the machine they have. There is no word back from him yet. I will not be getting a machine today.
Although these things may sound simple, to me they all add up. It is such an effort to get anything done. I get to feeling overwhelmed, frustrated and worn out. I run out of energy to keep moving ahead. If you have never had to deal on an ongoing basis with a lot of medical issues for any length of time, you probably cannot relate. But as I said, nothing is simple.
When I last wrote about my medical situation, the insurance company had messed up our address so I had to wait to schedule the CT scan.
I called this week to schedule the scan. It seems that since my last blood work was in August, they need me to have another set of blood work before they can schedule the scan. They must check my kidney function before giving me the contrast. I called the doctor's office telling them what I needed and why. They called me back saying the doctor had left the order at the front desk for me.
I went this morning, picked up the order from the doctor's office and headed over to the Lab. It seems everyone in Bucks County needed lab work today, so there was a long line.
There were two women working, but I think one must have been a trainee, because all she did was watch. The other one had to do all of the paperwork, type everything into the computer, make all of the copies, answer the phone AND do the lab work. SO progress was slow.
When it was my turn, I asked that in addition to the doctor, would they also fax it to OVDC where I will have the CT scan done. No, unless the doctor had it written on the order, they can only send it to the doctor and to me. SO I asked that they send it to me also. Again - nothing is simple. The doctor does not want or need this blood work done. It is the Diagnostic Center who needs it, but they cannot order it, only a doctor can order it. And so on.
In my last medical update, I mentioned how confused I was about the report from my sleep doctor and that I had a call in to the medical supply place to schedule my machine to be adjusted. When the woman called me back to schedule it, she asked for all of the information about my machine and determined it could not do what was needed. She said the technician would bring a new machine, similar to what I have now and we would trade. I was okay with that. The appointment was for today.
When I returned from the blood work, the woman called me to say that the doctor has asked for a specific machine, which she had not noticed. The machine they were going to bring does the same as the one he ordered, it is just a different manufacturer. They have called the doctor to ask if it is okay to give me the machine they have. There is no word back from him yet. I will not be getting a machine today.
Although these things may sound simple, to me they all add up. It is such an effort to get anything done. I get to feeling overwhelmed, frustrated and worn out. I run out of energy to keep moving ahead. If you have never had to deal on an ongoing basis with a lot of medical issues for any length of time, you probably cannot relate. But as I said, nothing is simple.
Wednesday, February 18, 2009
Valentine's Day Weekend (Part 2 -Christ Church Nashville)
Several years ago, when I sang in the choir of the church we were attending, the choir director spoke often about a wonderful church choir in Nashville. We sang some of their music and he was very enthusiastic about how special this choir was.
One summer when I was spending time in the Nashville area, I mentioned to my cousin about this choir. She immediately knew what I was talking about and said we should go to the church the next Sunday.
From the moment the tires of my car hit the pavement of the church's parking lot, I felt the presence of God in a powerful way. Christ Church Nashville is indeed a special place.
I know that since I asked Jesus into my life, that He always dwells
within me, as He does in all believers. SO whenever believers gather together, God is present. Sometimes, though, He manifests His presence in such powerful ways, that it is more "visible" than other times.Christ Church Nashville, when I first visited, was pastored by Pastor Hardwick, who had been there for 50+ years. He is one of the sweetest, most godly men, I have ever known. It is a testimony that he served there over 50 years and was still greatly loved by the entire congregation. Because of his compassion, the personality of the church was loving and friendly.
Before the service begins, the curtain is lowered. There are three clicks on the drumsticks, the start of the worship instruments, the sound of the choir and the curtain rises, the service has begun.
I cried through most of the first services I attended. For me to experience the presence of God in such a profound way was life changing. Worship there is all about God. The choir ushers us into His presence powerfully.
I have grown to love worshipping at that church. It is like nothing else I have ever experienced. And it happens every time I worship there.
SO for Valentine's Day, my sweet hubby took me to Christ Church Nashville.
When we sat down, immediately the woman behind us introduced herself and struck up a conversation. When her husband arrived, she introduced us. A sweet elderly lady came down the aisle greeting everyone and introducing herself, asking about us. The curtain fell. Soon there were the drumsticks, followed by the powerful strains of verse three of How Great Thou Art by the choir. What a way to start the service!
Pastor Dan Scott encouraged the Body to worship, to offer up our needs, to trust the Lord to meet us.
We read the Scripture responsively. During the baby dedications, the foreheads, thumbs and big toes of the babies are anointed with oil, symbolic of putting their minds on God, doing God's will and following God's path.
As worship continued, it was obvious God was at work. People were going to the altar, kneeling in prayer, there was sobbing in the pews. It was nearing the end of worship time, and the Pastor was heading toward the stage. He felt God telling him we needed to sing "Draw Me Nearer Nearer Precious Lord". Before he could get to the pulpit to direct this song, or even say anything about it, the worship leader was already singing it. God was truly in the house. Instead of cutting it off, the Pastor went with the flow of the Spirit. There was a message in tongues and an interpretation . More people came forward to kneel and pray at the altar. What a sweet time of fellowship with the Lord.
The Pastor inspired us with a very shortened version of his sermon on Hearing the Call of the Kingdom. I left feeling refreshed, renewed and inspired by God's presence.
It amazes me how a church like this, which to me is already excellent, continues to grow and reach out for a deeper experience with God. How their worship truly focuses on God and ushers me into His presence. I am truly blessed to have been there on Sunday. Thank you, my sweetie, for giving me such a gift.
(Still to come - Visiting family)
Tuesday, February 17, 2009
Valentine's Day Weekend (Part One - Traveling and Eating Out)
Usually when I write this blog, I am not real organized. I just write what comes to mind, in no particular order. This time, although it will probably be in the same style, I have several thoughts I want to share, so I am going to do it in several blogs.
This past weekend was Valentine's Day, as we all know. My sweet h
ubby took me to one of my favorite places for the weekend - to Nashville.
All week we thought our Saturday flight was out of Philadelphia at about noon. Saturday morning, when we checked, it was actually at 2:05.
Although I was excited about making this trip, there was one area of concern to me - having to eat out for so many meals. Since changing my eating habits, eating out has become more of a challenge for me. I need to pay particular attention that I get enough protein, but not too much fat or carbs.
Since our flight was a bit later than we expected, I made a mistake. I ate a big lunch, making sure I got plenty of protein, thinking this would make it easier to find the right foods later in the day.
I have not flown in almost a year and I cannot tell you how long ago that I got airsick. This was a very smooth flight, but I felt awful. My head was pounding and spinning, my stomach doing flip flops. That 2 hour flight felt like the longest air trip I had ever taken (and I have been to Hawaii!). In addition, I had not planned my pain medication very well. It wore off about a half an hour into the flight. Because of my back problems, I need to sit upright. The airline seats do not sit far enough up, so I have to lean forward to get in an upright position. This gives my back no support. During the remainder o
f the flight, I just could not get into a position where my back was not aching.
When we had landed and wee in the rental car, I ate a protein bar, hoping it would help my queasy stomach. It did help a little. About 4:45 CT we found a TGI Fridays to stop for dinner. Considering it was Saturday night AND Valentine's Day, although we had to wait, it was not that long. We ordered pecan crusted salmon, served over rice with vegetables and I also got an extra side of vegetables. I felt this was a very good choice, for getting lots of protein with few carbs (I did not eat the rice).
Sunday breakfast was continental style at the hotel. There were many choices available, but few that really met my needs. I opted for a packet of instant oatmeal made with water, an egg, and a container of lowfat yogurt (I could not find any fat free). When I logged those into the nutrition tracker, I found I had used half of my fat grams for the day and was way over on carbs. Not such good choices after all.
For lunch and dinner I made sure I had plenty of vegetables and salmon at one meal and shrimp at the other. Looking at the overall day, I was over on my fats, but most was from fish, so it was "good" fat, within my carb range and low on protein.
Monday breakfast held the same variety, so this time I opted for Raisin Bran with nonfat yogurt and an egg. It was still high on carbs and fat, but a little better than Sunday.
Since my flight there was so rough, I decided I would not eat lunch before our 12:30 flight home. I made it much better. And I stuffed my coat behind me on the seat, so my back did not hurt as much. On the way home, I ate a protein bar. When we arrived, I made myself a high protein shake.
When choosing where we would stay in Nashville, I made sure the hotel had a gym room. SO each of the three days, I was able to walk on the treadmill and/or ride the recumbent bike for 40 to 60 minutes. And last night I went to the gym with a friend and did some strength training, as well as walked the track 8 times (not consecutively) which totals a mile.
Overall, although I would have been happier to have had more control of my eating choices, I am happy with how I did in that area. Today is weigh in at the gym, so we will see...
(Still to come: Christ Church Nashville and Visiting family)
This past weekend was Valentine's Day, as we all know. My sweet h
ubby took me to one of my favorite places for the weekend - to Nashville.All week we thought our Saturday flight was out of Philadelphia at about noon. Saturday morning, when we checked, it was actually at 2:05.
Although I was excited about making this trip, there was one area of concern to me - having to eat out for so many meals. Since changing my eating habits, eating out has become more of a challenge for me. I need to pay particular attention that I get enough protein, but not too much fat or carbs.
Since our flight was a bit later than we expected, I made a mistake. I ate a big lunch, making sure I got plenty of protein, thinking this would make it easier to find the right foods later in the day.
I have not flown in almost a year and I cannot tell you how long ago that I got airsick. This was a very smooth flight, but I felt awful. My head was pounding and spinning, my stomach doing flip flops. That 2 hour flight felt like the longest air trip I had ever taken (and I have been to Hawaii!). In addition, I had not planned my pain medication very well. It wore off about a half an hour into the flight. Because of my back problems, I need to sit upright. The airline seats do not sit far enough up, so I have to lean forward to get in an upright position. This gives my back no support. During the remainder o
f the flight, I just could not get into a position where my back was not aching.When we had landed and wee in the rental car, I ate a protein bar, hoping it would help my queasy stomach. It did help a little. About 4:45 CT we found a TGI Fridays to stop for dinner. Considering it was Saturday night AND Valentine's Day, although we had to wait, it was not that long. We ordered pecan crusted salmon, served over rice with vegetables and I also got an extra side of vegetables. I felt this was a very good choice, for getting lots of protein with few carbs (I did not eat the rice).
Sunday breakfast was continental style at the hotel. There were many choices available, but few that really met my needs. I opted for a packet of instant oatmeal made with water, an egg, and a container of lowfat yogurt (I could not find any fat free). When I logged those into the nutrition tracker, I found I had used half of my fat grams for the day and was way over on carbs. Not such good choices after all.
For lunch and dinner I made sure I had plenty of vegetables and salmon at one meal and shrimp at the other. Looking at the overall day, I was over on my fats, but most was from fish, so it was "good" fat, within my carb range and low on protein.
Monday breakfast held the same variety, so this time I opted for Raisin Bran with nonfat yogurt and an egg. It was still high on carbs and fat, but a little better than Sunday.
Since my flight there was so rough, I decided I would not eat lunch before our 12:30 flight home. I made it much better. And I stuffed my coat behind me on the seat, so my back did not hurt as much. On the way home, I ate a protein bar. When we arrived, I made myself a high protein shake.
When choosing where we would stay in Nashville, I made sure the hotel had a gym room. SO each of the three days, I was able to walk on the treadmill and/or ride the recumbent bike for 40 to 60 minutes. And last night I went to the gym with a friend and did some strength training, as well as walked the track 8 times (not consecutively) which totals a mile.
Overall, although I would have been happier to have had more control of my eating choices, I am happy with how I did in that area. Today is weigh in at the gym, so we will see...
(Still to come: Christ Church Nashville and Visiting family)
Tuesday, February 10, 2009
The COntinuing Saga
I began writing this blog to keep people who were interested up to date with what is going on with me medically. There was one comment which complained that all I did was talk about myself in the blog. Well, as the subtitle explains this is about "My life such as it is".
The last time I wrote I had heard from the sleep doctor, but was still confused, I was waiting to hear from the gyn about whether to continue my medication and I was trying to get an authorization number to have a repeat CT scan.
On Friday I had a message from the gyn explaining that I was to continue the medication but needed to talk to her about how to take it. I called her back well before the time she stated, but got an after hours message and told to call back on Monday.
At this point I had enough of the medication to last through Tuesday night, but that is only day 11 of a 21 day cycle of taking it. When I called on Monday, I was told she would not be in until after 3, and put through to her nurse. All I got was an answering machine and had to leave a message. The nurse did return my call in a few hours, but could only take a message. When I told her about how much of the medicine I had left, she then said she would take care of calling it into my pharmacy and call me back with instructions on Tuesday.
While I was out at Home group last night, the gyn did leave a message giving me instructions and this morning the nurse called to confirm the medication had been called into the pharmacy. Check one thing off the list. But look at the time and effort it takes for something as simple as renewing a medication.
Yesterday morning I also received a call from my regular doctor's office giving me the authorization number for the CT scan. BUT, she told me, there was a problem which had to be dealt with before I could schedule the CT scan. My insurance has the wrong address and phone number for me and I needed to call them to straighten that out.
Nothing is ever simple for me. I called customer service. The woman answers the phone saying she wants to provide me with excellent service today. She asked for my insurance ID number, my name and birth date. Then she says that to verify who I am please give her my address and phone number. I explained that was why I was calling. I was told that they now have the wrong information for me and I want to correct it. Well, it seems that she cannot even talk to me about the account unless I verify the address. SO I tell her the address and she says that is not correct, what was your former address. I told her we had lived here for 24 years and had only been members of Horizon Blue Cross for 3 or 4 years, so there was no former address. This is the ONLY address. Finally I told her my Dunellen address and she said that was not correct either. She could also not tell me what the incorrect address is, although she verified that our paperwork is being sent to that incorrect address. The only way to correct it, she informed me, was to call my husband's employer and have them correct the information.
I called my husband and explained it all to him. Fortunately he was on his way home. When he arrived, he called the insurance company and got the same treatment. He asked for a supervisor, but she told him the same thing - his employer must make the correction.
He contacted the HR person from his company and she made the call to the insurance company. Guess what? They told HER they have the correct address. She verified that they indeed do. SO she related our story to whoever she talked to and they gave her an incident number for us to use if we need to make contact. What this means is that they messed up somewhere and are going to try and correct their problem. (We know that this is a new problem because as recently as last week we got a statement about my son's chest xray from them.)
Whew! IS it any wonder I am overwhelmed by all of this?
Early this morning I got a computer call from UPS saying they have a delivery from the medical supply company for me which will have to be signed for. I suspect this is my new sleep machine. But I have several questions about the package before I will accept it. OF course, the medical supply place does not open as early as the UPS call came in.
I tried again after 9am. When I asked the customer service rep what was the package they were sending, she replied a full face sleep mask, but she could not tell me what size it is.
She said the only other order on file is for an adjustment to my machine (not for a new machine) and transferred me to schedule that appointment. I had to leave a message and someday someone will call me back, I hope.
I am happy to hear that my machine will be adjusted and that I do not need a new machine. I am used to this one and understand how it works. But that phone conversation with the sleep doctor last week still confuses me.
ON a positive note, since starting the I Lost It program at the gym two weeks ago, I have lost 5.4 more pounds! That is something to celebrate. With all of the stress I feel about dealing with all of these medical problems, I am usually up for a good workout when I go to the gym. I guess that is the positive side of having a hard time getting anything accomplished. At least it is helping me pound off the pounds!
The last time I wrote I had heard from the sleep doctor, but was still confused, I was waiting to hear from the gyn about whether to continue my medication and I was trying to get an authorization number to have a repeat CT scan.
On Friday I had a message from the gyn explaining that I was to continue the medication but needed to talk to her about how to take it. I called her back well before the time she stated, but got an after hours message and told to call back on Monday.
At this point I had enough of the medication to last through Tuesday night, but that is only day 11 of a 21 day cycle of taking it. When I called on Monday, I was told she would not be in until after 3, and put through to her nurse. All I got was an answering machine and had to leave a message. The nurse did return my call in a few hours, but could only take a message. When I told her about how much of the medicine I had left, she then said she would take care of calling it into my pharmacy and call me back with instructions on Tuesday.
While I was out at Home group last night, the gyn did leave a message giving me instructions and this morning the nurse called to confirm the medication had been called into the pharmacy. Check one thing off the list. But look at the time and effort it takes for something as simple as renewing a medication.
Yesterday morning I also received a call from my regular doctor's office giving me the authorization number for the CT scan. BUT, she told me, there was a problem which had to be dealt with before I could schedule the CT scan. My insurance has the wrong address and phone number for me and I needed to call them to straighten that out.
Nothing is ever simple for me. I called customer service. The woman answers the phone saying she wants to provide me with excellent service today. She asked for my insurance ID number, my name and birth date. Then she says that to verify who I am please give her my address and phone number. I explained that was why I was calling. I was told that they now have the wrong information for me and I want to correct it. Well, it seems that she cannot even talk to me about the account unless I verify the address. SO I tell her the address and she says that is not correct, what was your former address. I told her we had lived here for 24 years and had only been members of Horizon Blue Cross for 3 or 4 years, so there was no former address. This is the ONLY address. Finally I told her my Dunellen address and she said that was not correct either. She could also not tell me what the incorrect address is, although she verified that our paperwork is being sent to that incorrect address. The only way to correct it, she informed me, was to call my husband's employer and have them correct the information.
I called my husband and explained it all to him. Fortunately he was on his way home. When he arrived, he called the insurance company and got the same treatment. He asked for a supervisor, but she told him the same thing - his employer must make the correction.
He contacted the HR person from his company and she made the call to the insurance company. Guess what? They told HER they have the correct address. She verified that they indeed do. SO she related our story to whoever she talked to and they gave her an incident number for us to use if we need to make contact. What this means is that they messed up somewhere and are going to try and correct their problem. (We know that this is a new problem because as recently as last week we got a statement about my son's chest xray from them.)
Whew! IS it any wonder I am overwhelmed by all of this?
Early this morning I got a computer call from UPS saying they have a delivery from the medical supply company for me which will have to be signed for. I suspect this is my new sleep machine. But I have several questions about the package before I will accept it. OF course, the medical supply place does not open as early as the UPS call came in.
I tried again after 9am. When I asked the customer service rep what was the package they were sending, she replied a full face sleep mask, but she could not tell me what size it is.
She said the only other order on file is for an adjustment to my machine (not for a new machine) and transferred me to schedule that appointment. I had to leave a message and someday someone will call me back, I hope.
I am happy to hear that my machine will be adjusted and that I do not need a new machine. I am used to this one and understand how it works. But that phone conversation with the sleep doctor last week still confuses me.
ON a positive note, since starting the I Lost It program at the gym two weeks ago, I have lost 5.4 more pounds! That is something to celebrate. With all of the stress I feel about dealing with all of these medical problems, I am usually up for a good workout when I go to the gym. I guess that is the positive side of having a hard time getting anything accomplished. At least it is helping me pound off the pounds!
Thursday, February 5, 2009
Can't Live Without Them
I get lots of emails. Many of them ask me to do things, like forward to ten people so bad things won't happen to me. I am not much on clogging up my friends emails, so I rarely forward them. Sometimes I get surveys to fill out. Most of the time I answer them and pass them along. Recently one of the questions asked "List a place you go over and over". My answer? To the doctor. Over this past year I have made more doctor's visits than probably all total of my whole life previous to last year. So I have had a lot of experience in dealing with doctors this past twelve months. I have found out some things in dealing with doctors.
If I am over ten minutes late for an appointment, I will be charged $25 and have to reschedule. Yet, the doctor NEVER sees me at the time of my appointment - it is usually a minimum of 30 minutes past my appointment time when he enters the room. I guess his time is worth more than mine.
For the most part doctors are willing to take the time to listen to my concerns. Most of the time they do not hurry me along or appear to be in a rush. (probably the reason for the previous problem).
Some doctors love giving or ordering tests. I, as a patient, do not like having tests.
I need to have a repeat CT scan done. Almost a month ago I called the doctor's office asking them to get the authorization number from my insurance company so I can have this test. I called back once a week since then and was told "We will call you when we get the authorization." Yesterday while at my appointment, I mentioned to the doctor about this. He said"We will take care of this TODAY." He marched up to the front desk and told them to get me the number now. The women working there said,"That has already been taken care of" and spent the next ten minutes fluttering around, pretending to look for the paperwork. Of course it was not found, as nothing had been done about it. The one woman who took care of it under similar circumstances last time, told me she would call my insurance company and find out what the status is and call me back. When I got home, the nurse called and asked who ordered the CT scan. Can you believe this? Just further proof that nothing had been done previously. The helpful one called me and told me the insurance company had no record of a request for authorization and would have an answer within 48 hours. At least she was honest that nothing had been done.
I had a sleep test done almost a month ago and this week had still not heard from the doctor as to the results. This was the doctor who was so very concerned about the severity of my sleep apnea. GO figure. I called his office. The nurse told me she knew he had ordered me a new machine. I was shocked. Without even discussing it with me. She made a lame excuse about my files being at the other office (I called the office where I am seen by the doctor) and promised he would call me the next day. In the meantime she suggested I called the company that supplies my machine. What a joke - I do not even know anything about the machine. What am I supposed to say?
About 5 pm the next day the doctor did call. I do not know who was more confused - me or him. First he told me he ordered the medical supply company to come adjust my machine. Then when I asked him about my oxygen levels during the test he said, "Your oxygen levels were good - 93%. SO when they bring your new machine, tell them you do not need the oxygen and send that back." Wait a minute, a new machine? Oxygen machine? Then I asked did he order a new mask since the one I have is too small. He said, "I want you to wear a full face mask (which I already do). Call the company and tell them to bring you a new mask when they bring the machine." All of this equipment requires a doctor's prescription. I cannot call and tell them anything.
When I went for my gyn exam this week, I saw a nurse practitioner. She cannot write prescriptions. She told me she would check with the doctor about whether I should continue on the medication for hypoplasia or not. She told me she would call me that afternoon and let me know. I am still waiting.
Dealing with medical issues is hard enough. But having to expend all of the energy to follow up makes it harder. Then when professionals do not do their part, and I have to keep calling and asking, it is overwhelming.
If I did not have God as my Source and my Strength, I would be ready to give up. But He picks me up when I am down and discouraged, and helps me take the next step.
My final thought is: Doctors - can't live without them.
If I am over ten minutes late for an appointment, I will be charged $25 and have to reschedule. Yet, the doctor NEVER sees me at the time of my appointment - it is usually a minimum of 30 minutes past my appointment time when he enters the room. I guess his time is worth more than mine.
For the most part doctors are willing to take the time to listen to my concerns. Most of the time they do not hurry me along or appear to be in a rush. (probably the reason for the previous problem).
Some doctors love giving or ordering tests. I, as a patient, do not like having tests.
I need to have a repeat CT scan done. Almost a month ago I called the doctor's office asking them to get the authorization number from my insurance company so I can have this test. I called back once a week since then and was told "We will call you when we get the authorization." Yesterday while at my appointment, I mentioned to the doctor about this. He said"We will take care of this TODAY." He marched up to the front desk and told them to get me the number now. The women working there said,"That has already been taken care of" and spent the next ten minutes fluttering around, pretending to look for the paperwork. Of course it was not found, as nothing had been done about it. The one woman who took care of it under similar circumstances last time, told me she would call my insurance company and find out what the status is and call me back. When I got home, the nurse called and asked who ordered the CT scan. Can you believe this? Just further proof that nothing had been done previously. The helpful one called me and told me the insurance company had no record of a request for authorization and would have an answer within 48 hours. At least she was honest that nothing had been done.
I had a sleep test done almost a month ago and this week had still not heard from the doctor as to the results. This was the doctor who was so very concerned about the severity of my sleep apnea. GO figure. I called his office. The nurse told me she knew he had ordered me a new machine. I was shocked. Without even discussing it with me. She made a lame excuse about my files being at the other office (I called the office where I am seen by the doctor) and promised he would call me the next day. In the meantime she suggested I called the company that supplies my machine. What a joke - I do not even know anything about the machine. What am I supposed to say?
About 5 pm the next day the doctor did call. I do not know who was more confused - me or him. First he told me he ordered the medical supply company to come adjust my machine. Then when I asked him about my oxygen levels during the test he said, "Your oxygen levels were good - 93%. SO when they bring your new machine, tell them you do not need the oxygen and send that back." Wait a minute, a new machine? Oxygen machine? Then I asked did he order a new mask since the one I have is too small. He said, "I want you to wear a full face mask (which I already do). Call the company and tell them to bring you a new mask when they bring the machine." All of this equipment requires a doctor's prescription. I cannot call and tell them anything.
When I went for my gyn exam this week, I saw a nurse practitioner. She cannot write prescriptions. She told me she would check with the doctor about whether I should continue on the medication for hypoplasia or not. She told me she would call me that afternoon and let me know. I am still waiting.
Dealing with medical issues is hard enough. But having to expend all of the energy to follow up makes it harder. Then when professionals do not do their part, and I have to keep calling and asking, it is overwhelming.
If I did not have God as my Source and my Strength, I would be ready to give up. But He picks me up when I am down and discouraged, and helps me take the next step.
My final thought is: Doctors - can't live without them.
Tuesday, February 3, 2009
Needing to vent
I am feeling frustrated and a bit discouraged. One year ago I began a journey to healing. I have seen doctors, taken medicine, had tests, started using a sleep machine, gone to physical therapy, had chest xrays, a mammogram and a CT scan, joined the gym, had surgery and began eating healthy. IN addition I have prayed and others have been praying for me.
Some days, I look back and begin to feel like I am making progress. Then I hit another bump in the road - like when I got pneumonia from the surgery anesthesia and when I had to have another sleep test recently.
My hubby asked me this morning how much total weight had I lost. I could not even tell him because the scales at every location I get weighed, weigh differently. Two weeks ago at the dietitian I had lost a total of 67 pounds. But then I had to get weighed at the gym for the "I Lost It At PEAC" program. That scale said I had gained 4 pounds. Then the night of the first Lost It meeting, I had lost another 13 pounds according to a different scale. Yesterday I had my second weigh in for Lost It and I had lost 1.8 pounds from the first weigh in. Today at the gyn doctor I was five pounds lighter than yesterday. Can you understand why I have no idea how much weight I have lost at this point???? (And they all tell me their scale is correct because they have it calibrated! )
The gyn doctor was very happy with my weight loss since our last visit. But when she did the exam, she found blood in my stool. She told me I need to see my regular doctor and to have a colonoscopy. Another bump in the road. I left there feeling discouraged. I was asking myself why, when I have done all that I have this past year to improve my health, are things still going wrong? SO I see my regular doctor tomorrow morning.
Speaking of which, I was supposed to have a follow up CT scan in January. I have been trying for three weeks to get my doctor's office to get me an authorization number so I can schedule it. Maybe tomorrow I can get some action on that too.
Three weeks ago I had a sleep test done. I still have heard nothing from the doctor regarding it. I called the office today and the nurse told me he had ordered my new machine. I told her I knew nothing about that. Why would he do that without discussing it with me?
As you can tell, I am not a happy camper about now. I do not like even the thought of a colonoscopy let alone hearing results from one. And just for once, after a year of hard work, I'd like some good news when I see a doctor.
Some days, I look back and begin to feel like I am making progress. Then I hit another bump in the road - like when I got pneumonia from the surgery anesthesia and when I had to have another sleep test recently.
My hubby asked me this morning how much total weight had I lost. I could not even tell him because the scales at every location I get weighed, weigh differently. Two weeks ago at the dietitian I had lost a total of 67 pounds. But then I had to get weighed at the gym for the "I Lost It At PEAC" program. That scale said I had gained 4 pounds. Then the night of the first Lost It meeting, I had lost another 13 pounds according to a different scale. Yesterday I had my second weigh in for Lost It and I had lost 1.8 pounds from the first weigh in. Today at the gyn doctor I was five pounds lighter than yesterday. Can you understand why I have no idea how much weight I have lost at this point???? (And they all tell me their scale is correct because they have it calibrated! )
The gyn doctor was very happy with my weight loss since our last visit. But when she did the exam, she found blood in my stool. She told me I need to see my regular doctor and to have a colonoscopy. Another bump in the road. I left there feeling discouraged. I was asking myself why, when I have done all that I have this past year to improve my health, are things still going wrong? SO I see my regular doctor tomorrow morning.
Speaking of which, I was supposed to have a follow up CT scan in January. I have been trying for three weeks to get my doctor's office to get me an authorization number so I can schedule it. Maybe tomorrow I can get some action on that too.
Three weeks ago I had a sleep test done. I still have heard nothing from the doctor regarding it. I called the office today and the nurse told me he had ordered my new machine. I told her I knew nothing about that. Why would he do that without discussing it with me?
As you can tell, I am not a happy camper about now. I do not like even the thought of a colonoscopy let alone hearing results from one. And just for once, after a year of hard work, I'd like some good news when I see a doctor.
Monday, February 2, 2009
The Super Bowl - my take
I am not a sports fan - never have been, probably never will be.
Every year, though, my hubby tries to get me to watch the Super Bowl. It started with just coming into the room to watch the halftime show. These usually do not impress me. Although I did enjoy Paul McCartney one year.
Gradually it has worked up to watching the entire game. SO last night I found myself watching Super Bowl XLIII.
First I had to figure out who was playing. I saw the little bird head on the side of one team's helmets and had to ask what kind of bird it was - okay, the Arizona Cardinals. Ignorant as I am about sports, the only Cardinals team I had heard of was in baseball, so this was a new revelation to me - a Cardinals football team. Do they even have cardinals in Arizona?
TO me, football looks like a bunch of big guys trying to jump on each other at every opportunity. How many ways can they find to bump, trip and bring each other down?
Some of the guys wear a little towel at their waist - what is that for? One Steeler had a special collar at the back of his neck. Was this a fashion statement?
There were a lot of men out there on the field, but all night I kept hea
ring about Kurt Warner, Kurt Warner, Kurt Warner. Like he was the only one out there. And his team, although they apparently made the game very exciting, did not even win!
I always hear so much hype about the fantastic Super Bowl commercials. How they cost so much money. How they are the best commercials out there. With few exceptions, I was not impressed with the commercials. They are, after all, ads. Some were in poor taste. Some used offensive (to me) language. The etrade babies were cute and a couple of the horse ads (for beer) were cute.
I guess the highlight for me was "the Boss" at halftime. Bruce Springsteen is the same age as I am.
When he was laid back on the stage stretching as the halftime show began, I understood from a personal perspective how hard that is to do. His energy was contagious. He packed into 12 minutes more than I could have hoped for. Classics like 10th Avenue Freeze Out and Born to Run, as well as new ones. Adding a gospel choir for a couple of minutes was a nice touch. How do they synchronize the fireworks to the music like that? Bruce had it all. One of the best halftime shows in my memory.
The last quarter of the game was very exciting. I went out into the kitchen to get some fruit and my husband started screaming for me to come back and watch the replay of the Cardinals taking back the lead. That guy did make a nice run.
I still do not understand when they get penalties for too much aggression or whatever it is called. Isn't that what this game is about? And if the team gets a penalty, how come they end up with the ball?
I watched it until the end. I saw the Steelers win. Both teams apparently played well. But I still do not understand football.
Every year, though, my hubby tries to get me to watch the Super Bowl. It started with just coming into the room to watch the halftime show. These usually do not impress me. Although I did enjoy Paul McCartney one year.
Gradually it has worked up to watching the entire game. SO last night I found myself watching Super Bowl XLIII.
First I had to figure out who was playing. I saw the little bird head on the side of one team's helmets and had to ask what kind of bird it was - okay, the Arizona Cardinals. Ignorant as I am about sports, the only Cardinals team I had heard of was in baseball, so this was a new revelation to me - a Cardinals football team. Do they even have cardinals in Arizona?
TO me, football looks like a bunch of big guys trying to jump on each other at every opportunity. How many ways can they find to bump, trip and bring each other down?
Some of the guys wear a little towel at their waist - what is that for? One Steeler had a special collar at the back of his neck. Was this a fashion statement?
There were a lot of men out there on the field, but all night I kept hea
ring about Kurt Warner, Kurt Warner, Kurt Warner. Like he was the only one out there. And his team, although they apparently made the game very exciting, did not even win!I always hear so much hype about the fantastic Super Bowl commercials. How they cost so much money. How they are the best commercials out there. With few exceptions, I was not impressed with the commercials. They are, after all, ads. Some were in poor taste. Some used offensive (to me) language. The etrade babies were cute and a couple of the horse ads (for beer) were cute.
I guess the highlight for me was "the Boss" at halftime. Bruce Springsteen is the same age as I am.
When he was laid back on the stage stretching as the halftime show began, I understood from a personal perspective how hard that is to do. His energy was contagious. He packed into 12 minutes more than I could have hoped for. Classics like 10th Avenue Freeze Out and Born to Run, as well as new ones. Adding a gospel choir for a couple of minutes was a nice touch. How do they synchronize the fireworks to the music like that? Bruce had it all. One of the best halftime shows in my memory.The last quarter of the game was very exciting. I went out into the kitchen to get some fruit and my husband started screaming for me to come back and watch the replay of the Cardinals taking back the lead. That guy did make a nice run.
I still do not understand when they get penalties for too much aggression or whatever it is called. Isn't that what this game is about? And if the team gets a penalty, how come they end up with the ball?
I watched it until the end. I saw the Steelers win. Both teams apparently played well. But I still do not understand football.
Sunday, February 1, 2009
The Ice Cube Tray
Yesterday I looked into the freezer, wanting to get ice cubes for my water. My dietitian suggested drinking cold water as a way of boosting the metabolism. When I took out the ice cube box, it was empty. No problem, I thought, I'll just empty a tray of ice cubes into the box. That's when trouble hit, the ice cube tray was already empty. Whoever had used the ice cubes had not bothered to refill it. They had not even removed the tray from the freezer so anyone else would know it was empty and needed to be refilled. This was not a life shattering moment, to say the least. But it did make me think of something.
Sometimes I feel like that ice cube tray. People come and take from me. I also give and give to others. But there comes a point when I am running on empty. All my little sections have been emptied and I need some refilling.
When this happens, sometimes I do not take the tray out of the freezer and I kind of wait around for someone to notice and restore to me some of what I have given to them. This usually is not a good option.
When I turn to the source of my strength, it is then that I am restored. I admit I am empty and need His love and forgiveness to continue on. I turn to Jesus and His Word. If I would only go to Him more often, my tray would never be empty. He has promised us Living Water so we'll never thirst again.
Our church is doing The Truth Project for the next couple of months. Last week something in the lesson really knocked me between the eyes. The question was posed, "Do I live like I know that Jesus is always with me, watching and hearing everything I do and say?" How different would my day to day living be if I realized the full impact of having Jesus always with me?
For one thing, my tray would never be empty.
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